Join us in our mission to advocate for families affected by LGMD2i. Together, we can spread awareness and support vital clinical research for this ultra rare condition.

Your support fuels advocacy, awareness, and scientific breakthroughs for our children and families affected by LGMD2i.

Join Our Awareness Campaign

Cure LGMD2i Canada is dedicated to raising awareness about LGMD2i. Together, we can support families and advocate for vital research and treatment options.

September 2023


Awareness Campaign

In September 2023, we launched our first awareness campaign—a green shirt fundraiser focused on advocacy and educating family and friends about LGMD2i. Coming together in support of our children, we took the first steps toward raising awareness.

November 2023


Fundraising Event

In November 2023, we hosted our first fundraising event, Stand Up to MD—a wine tasting and silent auction that brought together family, friends, and supporters. The evening was a wonderful success, raising funds while fostering a strong sense of community and hope.

September 2024


Fundraising Event

In September 2024, we hosted our second fundraising event, featuring a silent auction, advocacy efforts, and sharing important updates with all who attended. Thanks to the generosity of our incredible families and friends, the evening was once again a wonderful success.

August 2025


Official Non-Profit

We’re proud to share that Cure LGMD2i Canada is now a federally incorporated non-profit! This step brings us closer to our mission of raising awareness, funding research, and supporting families affected by LGMD2i.

August 2025 – Present


Social Media Awareness Campaign

In August 2025, we launched our Instagram account @curelgmd2icanada to spread awareness and help bring people living with LGMD together. These posts increase public knowledge of rare disease, reduces stigma, and supports families by building understanding.

September 2025


School Resources

We’re excited to share a complete, easy-to-follow lesson as well as activities for teachers to bring LGMD awareness into their classrooms! Now available in the “Resources” section of our website.

October 2025


LGMD2i Connect

LGMD2i Connect is an online program that hosts Zoom calls for individuals, families, and friends. It’s a space to find support, encouragement, and connection. No matter where you are in the world. Together, we’re building hope and community.

October 2025


First LGMD2i Connect Meeting

October 18th, 2025 at 12:00pm ET, 9:00am PT/ 6:00pm CET.

This first meeting we will be focusing on connecting parents of children living with LGMD2i.

Please contact us through email or social media to be sent the zoom link!

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