About Us

Cure LGMD2i Canada Foundation was born from a deeply personal journey. Three years ago, our children were diagnosed with Limb Girdle Muscular Dystrophy 2I/R9 (LGMD2i), a rare condition that affects the muscles of the arms, legs, and sometimes the heart and lungs. Facing this diagnosis was overwhelming, but we were fortunate to find hope, guidance, and encouragement through the CureLGMD2i Foundation in the U.S. Their support showed us that advocacy, community, and dedicated research can truly make a difference and inspired us to take the step to create our own Canadian nonprofit.

Our mission is deeply close to our hearts: to raise awareness, provide advocacy, and fundraise to support scientific research and potential treatments for LGMD2i/R9. We believe that by working together, we can create life-changing opportunities for our children and others living with this condition.

Through events, campaigns, and community-building initiatives, we aim to empower families, inspire hope, and bring the Canadian LGMD2i/R9 community closer to a future where treatments and, ultimately, a cure are possible.

Every action we take is guided by love, passion, and an unwavering commitment to improving the lives of those affected by LGMD2i/R9.

Board of Directors

Jennifer Zuchetto – Executive Director/ Co- Founder

Ryan Zuchetto – Treasurer/ Co- Founder

Suheily Montalvo/Wasylyk – Secretary

David Kurney – Director, Fundraising

Aisha Shteinberg- Director, Programs and Education