Join us in our mission to advocate for families affected by LGMD2i/R9. Together, we can spread awareness and support vital clinical research for this ultra rare condition.

Community Events

Discover Upcoming Events, Conferences, and Community Connections

LGMD Scientific Summit

The LGMD Scientific Summit is an international conference that brings together researchers, clinicians, industry leaders, and patient advocacy organizations to share the latest advances in Limb-Girdle Muscular Dystrophy research, clinical care, and emerging therapies. The summit fosters collaboration and accelerates progress toward improved treatments and, ultimately, a cure for all forms of LGMD.

Western Canadian Neuromuscular Conference

The Western Canadian Neuromuscular Conference is an annual educational meeting that brings together healthcare professionals, researchers, allied health providers, and patient advocacy organizations to share the latest advances in the diagnosis, treatment, and care of neuromuscular disorders. The conference promotes collaboration, education, and improved care for individuals and families living with neuromuscular conditions across Western Canada.

Connecting for a Cure

Join Cure LGMD2i Canada Foundation for Connecting for a Cure, an evening dedicated to raising awareness and supporting Canadians living with LGMD2i/R9. Held at the Canadian Brewhouse Township in Calgary, Alberta, from 5:00–8:00 p.m., the event features a silent auction, virtual golf, and opportunities to connect with the community while helping advance advocacy, education, and research.